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'To strengthen and cultivate evidence based practice in health care and at the interface of health and social care'
Page updated: 11 November 2004

A project to find out about the benefits of Complementary and Alternative Medicine and therapies in the treatment of Ménière’s syndrome

What is the purpose of this study?

We want to find out about your use and experiences of Complementary and Alternative Medicine (CAM) in the treatment of Ménière’s syndrome. We will use this information to identify possible supportive CAM treatments for this syndrome and to develop further research to explore how they benefit persons with this condition.

What will happen if I take part?

You will write up your own experience in your own words and send this to the research team. We will examine both your and others’ experiences and draw up a report. If we need further information or elaboration on parts of your account we will write to you and ask you to provide this. With your permission only, we will also draw together an edited, anonymised summary of your experiences to be made available to others via a dedicated web site. We will send you this summary for you to check and change as appropriate prior to its inclusion on the web site. Your written experiences will only be read by members of the research team. Your document will be kept in a locked filing cabinet. We will write up and present the analysis of your and others’ experiences in articles in journals, and conference presentations. In these presentations, it will not be possible to identify individual persons who have taken part. While presentations and articles may include quotes from your written material, your own comments will be kept anonymous.

Will the information I give be confidential?

Any information that you give will be kept confidential and your name will not be mentioned in any reports.

What happens if I change my mind about you using my experiences?

You can withdraw your consent from the study at any time. Just let us know in writing. You do not have to give a reason.

Who is running the project?

The project is being undertaken by researchers in the Health Care Practice R&D Unit,at the University of Salford and at the University of Leeds. Professor Andrew Long is supervising the research. Other members of the research team include Tony Bennett who has experienced the symptoms of Ménière’s syndrome for over 15 years and has positive experience of using CAM, and Mei Xing, Lecturer in Acupuncture and Traditional Chinese Medicine. The research is being funded by an internal grant within the University.

Can I get further information?

If you would like any further information, please contactAndrew Long on the research team.

If you would prefer to speak to him on the telephone, please ring him on 0113 343 6250 . He will ring you back so that you do not have to pay for the telephone call.

Can I take part now?

If you would like to take part now, please send your experiences to Andrew Long. Before you write your experiences, it may help to look at the guidance notes and check that you consent. It will be assumed that if you send an email with your experiences that you are consenting to participate in the project.

If you prefer to send your personal story by post, once you have written your experiences, you can print out the consent form and guidelines and send them directly to
Professor Andrew F Long
c/o Health Care Practice R&D Unit
University of Salford, Allerton Building
Salford M5 4WT

© HCPRDU, University of Salford, 2004